Showing posts with label friends. Show all posts
Showing posts with label friends. Show all posts

Tuesday, October 11, 2011

Toy Review Tuesday: Corrugated Castle

This carboard coloring castle was a hit at Matthew's birthday party. Kids from 17 months through 13 years enjoyed playing in the castle.


What's not to love? It's a fun place for a game of Peek-a-boo. Kids don't get in trouble for writing or coloring on the walls with markers. It's a great set-up for pretend play.

It came in 8 pieces with instructions. One of Matthew's uncles put it together at the party.


After the party, it was taken apart for us to take home and I set it up at home for more coloring and hiding fun.

At this time, the corrugated castle costs $34.99 on amazon.com. It was totally worth it for the party.

Another option is to make one at home with large, sturdy shipping boxes. I had made one before deciding to get the castle. I cut out a door on opposite sides and a little peep hole on another side. The peep hole is Elizabeth's favorite. Matthew and Elizabeth (and our cat) have a blast crawling through it, hiding in it, with it at home but would be too boring and unlikely to hold up well at a party with 13 kids.


We also bought the corrugated house but didn't have enough time to set it up at the party. We'll save it for a future birthday.

Monday, August 22, 2011

Leukemia

Illness usually comes with little or no warning. And when life is on the line, all other problems seem small in comparison. And we remember that health matters most.

Matthew's dear friend is fighting for her life against Acute Myeloid Leukemia (AML). Gabbie is 2 weeks younger than Matthew. Like Matthew, she has Down syndrome. She will be 4 years old in October.

Thanks to a mutual friend, we first met Gabbie and her family in June 2009. (See Weekend With Friends post for photos and video). Matthew and Gabbie were 20 months old. We marveled at Gabbie's independent walking skills when Matthew still needed full support when taking steps. Both kids had some degree of food aversion and/or pickiness. They played next to each other. In 2010 they both welcomed their younger siblings into the world, born just 4 days apart. They are both determined and persistent in their own little ways.


We had planned to get together again this year - right before the diagnosis. Needless to say, plans are on hold. We have faith that Gabbie will overcome this and that we will celebrate with them soon enough.

Chemotherapy has started, a 6-month treatment that she will undergo even through her 4th birthday. She is in the hospital this week with pneumonia, which is one of the possible complications for undergoing chemotherapy. Her mom's recent update: Gabbie has begun to lose her hair. She says, "I'm not sad about the hair loss because it's just hair and it will grow back. I'm sad about what it represents and what it is constantly reminding us - that Gabbie is very ill and fighting for her life."

It makes us very sad too.

If you would like, please visit Gabbie's CaringBridge page. Stop in if you can, say hello, and please keep her in your prayers.

About Leukemia In Individuals With Down Syndrome
I personally detest statistics but in the interest of putting a few things into perspective about leukemia and Down syndrome, here are a couple of facts I found.

- According to the National Down Syndrome Society (NDSS), approximately 1 in every 100 individuals with Down syndrome will develop leukemia compared with 1 in every 2000 children without Down syndrome.

- Compared to most children with AML, children who also have Down syndrome respond to treatment better, and have survival rates as high as 85%, compared with 50-55% for children without Down syndrome. However, children with Down syndrome have more complications than children without Down syndrome.

To learn more about treatment of AML, here is an article I found on CureSearch for Children's Cancer.


Related posts:
Weekend With Friends
Mi Casa Es Su Casa

Sunday, October 3, 2010

Matthew's 3rd Birthday Party Photos

Our little boy turns 3 on October 5. We had a big party today. Many thanks to everyone who came to celebrate with us and making it such a fun day!
the birthday boy
big cousin Babas & Auntie Kis
little sister and Grandma
greeting everyone
Matthew and his fans
playzone
Elizabeth with Uncle G
wanting to go downstairs
having a drink with Grandpa
Matthew with Auntie
birthday cake with whipped cream frosting
lit candle
party people
with Daddy and cousin
friend
friends
Rheva, Nice & Landon
Marlin and Joy
cousins
friends
opening presents
Matthew and Auntie L

Wednesday, September 22, 2010

A Video by Ashley

Ashley is an incredible, loving big sister to Laura. She captures Laura's charm and beautiful spirit with her photography and shares her with us on her blog Dear Laura..Love, Sissy. With her permission, I am sharing this video that she put together to raise awareness about Down syndrome. Enjoy the video!

Saturday, September 11, 2010

DS Labor Day Weekend Meet-Up 2010

Some photos from last weekend - Labor Day weekend - to remember the smiling faces of families who have chromosomally enhanced kids, like us. Some traveled several hours from out of town. Some lived in town. All were fellow bloggers and/or members of the forums Life's Journey with Down Syndrome and DownSyn. It was the first time for most in the group to meet IRL (in real life).

moms and kids
It was a weekend packed with activities for everyone. Matthew and I joined the Saturday activities. In the morning, we enjoyed playtime at an awesome indoor playground at Calvary Church.
playgroup at Calvary Church, Saturday am
indoor playground
on top of slide
sliding on tummy
sliding all by himself
climbing low ladder
tunnel
Then we had dinner at O'Charley's.
O'Charley's
Thanks to RK and everyone who made this meet-up possible and so much fun!
RK