tag:blogger.com,1999:blog-4274008603909996948.post3092734335033484103..comments2023-10-25T04:03:19.002-05:00Comments on Bill and Ria - Sharing experiences about life, parenting, and Down syndrome: Bloodwork at 2nd Year Pediatrician AppointmentRiahttp://www.blogger.com/profile/06737298798388579270noreply@blogger.comBlogger13125tag:blogger.com,1999:blog-4274008603909996948.post-24478802624667952082009-10-31T17:50:02.814-05:002009-10-31T17:50:02.814-05:00Ria,
What did you end up doing with the blood labs...Ria,<br />What did you end up doing with the blood labs? I'm just curious! (Or nosy, as the case may be!)Bethhttps://www.blogger.com/profile/10092198491274193931noreply@blogger.comtag:blogger.com,1999:blog-4274008603909996948.post-1557337805458793922009-10-06T20:33:34.156-05:002009-10-06T20:33:34.156-05:00Yikes that is quite a list! Did you find a recomme...Yikes that is quite a list! Did you find a recommendation somewhere to check all those levels? I'm feeling like a bad mom cause Kayla has never had a full blood panel like that before. The only thing I regularly had checked was the celiac screening and thyroid. I didn't realize about all this other stuff! She has an appt next month with Dr Capone at Kennedy Kreiger - it's the only Down syndrome clinic she's ever had an appt with so I'm planning on asking about all the bloodwork!Michellehttps://www.blogger.com/profile/02441176684416139172noreply@blogger.comtag:blogger.com,1999:blog-4274008603909996948.post-29042664557443172502009-10-05T22:54:26.866-05:002009-10-05T22:54:26.866-05:00Along with keeping him hydrated, if you can put a ...Along with keeping him hydrated, if you can put a warm pack (pad, towel, compress) on his arm --that is, if it doesn't bother him too much --will help make Matthew's veins easier to stick also. This may not be at all convenient for you during an office visit, but I thought it might be worth suggesting ;o)<br /><br />I'm sorry that he has to have the bloodwork. That's no fun for either of you, but it's likely that all of those tests will be run from 2 or 3 vials, and just one stick.Austynhttps://www.blogger.com/profile/12428891088287766221noreply@blogger.comtag:blogger.com,1999:blog-4274008603909996948.post-65091988546114992172009-10-04T13:44:26.069-05:002009-10-04T13:44:26.069-05:00The last time Hannah had hers done she had 8 vials...The last time Hannah had hers done she had 8 vials...and she's a big girl! Some of the tests need to be in different kinds of vials. You can ask for Emla cream which numbs the skin. We've never used it, but know lots who do.<br /><br />No, not every kid has labs done. Every kid with Ds should have most of these, but usually just end up with basic thyroid and a CBC. :{<br /><br />I highly recommend that you get the script for the labs and then call the hospital and ask about blood draws. Tell them Matthew has special needs and is hard to stick (make sure he's well hydrated--it's much easier to stick when hydrated). Ask when a NICU or PICU phlebotomist will be available. Make sure they use a butterfly needle (probably they would anyhow) that way the needle won't wiggle when they change vials.<br /><br />I'm sure the doctor will delete things from your list.<br /><br />Things you don't really need, IMO, are: <br />Leukemia (they check that with the CBC)<br />Glucose<br />urea nitrogen<br />creatinine<br />Vit A <br />sodium<br />potassium<br />chloride<br />total CO2<br /><br />Give him a chance to recover from his vaccines (spread them out too, if there are several). Or, get the labs first, then the vaccines.Bethhttps://www.blogger.com/profile/10092198491274193931noreply@blogger.comtag:blogger.com,1999:blog-4274008603909996948.post-51635546292086687822009-10-03T15:12:52.939-05:002009-10-03T15:12:52.939-05:00Oh....oh.....oh......I just read the other post......Oh....oh.....oh......I just read the other post.....YAY!!!! CONGRATULATIONS!!!! I'm sooooo excited for you guys!!!!!<br /><br />Happy BABY!!!!!!Debbiehttps://www.blogger.com/profile/15734408000659842331noreply@blogger.comtag:blogger.com,1999:blog-4274008603909996948.post-11771034158198339142009-10-02T14:31:20.493-05:002009-10-02T14:31:20.493-05:00I remember it taking 4 of us to hold Josh down for...I remember it taking 4 of us to hold Josh down for blood work as he got older.<br /><br />Do check for everything. We've uncovered a serious thyroid condition, diabetes and even leukemia over the years. Better to be safe.<br /><br />Life with a child who has Down syndrome is the best.<br /><br />6 months after Josh was born with Down syndrome, I attended my first parent group. I was touched by the struggle people were having with “why?” I went to bed with a heavy heart and awoke with this story. I hope you enjoy it.<br /><br />http://tinyurl.com/secretjourneyLance Boldthttps://www.blogger.com/profile/11240812989342948787noreply@blogger.comtag:blogger.com,1999:blog-4274008603909996948.post-37925358996380928022009-10-02T05:57:56.756-05:002009-10-02T05:57:56.756-05:00Just wondering if distracting him with toys or rea...Just wondering if distracting him with toys or reading him his favourite book would do the trick. Hope u get a good nurse who is kid friendly - that helps a lot.The Cooking Ninjahttp://www.cookingninja.comnoreply@blogger.comtag:blogger.com,1999:blog-4274008603909996948.post-46958750100289267492009-10-02T00:41:54.247-05:002009-10-02T00:41:54.247-05:00We have to go for 3 yr check-up. Where did you ge...We have to go for 3 yr check-up. Where did you get the list of tests?Juliehttps://www.blogger.com/profile/12282587109702216257noreply@blogger.comtag:blogger.com,1999:blog-4274008603909996948.post-60303531925666565432009-10-01T17:12:34.036-05:002009-10-01T17:12:34.036-05:00Violette turned two the end of June, and I haven&#...Violette turned two the end of June, and I haven't made myself take her yet...I will...I just keep putting it off...this post is a good kick in the rear for me...once we kick this H1N1!!!<br />MissyViolette's Momhttps://www.blogger.com/profile/15231023968519907458noreply@blogger.comtag:blogger.com,1999:blog-4274008603909996948.post-5300345733055943202009-10-01T13:23:01.728-05:002009-10-01T13:23:01.728-05:00Can you ask that the blood be drawn at the hospita...Can you ask that the blood be drawn at the hospital lab, perhaps? I like a particular phlebotomist at Children's (who does a great job with Micah's itty bitty veins), and if I know he's going to have a visit there close to a checkup, I'll ask the pediatrician to send the orders for bloodwork to the hospital lab instead of having it done at the pediatrician's office.Jenniehttps://www.blogger.com/profile/06617791426447246761noreply@blogger.comtag:blogger.com,1999:blog-4274008603909996948.post-46857766659867846842009-10-01T12:01:57.340-05:002009-10-01T12:01:57.340-05:00Best of luck for the blood draw. As long as they ...Best of luck for the blood draw. As long as they can get enough blood, test it for all you can. The draw is the worst part.Angie Willeyhttps://www.blogger.com/profile/11172557357486342573noreply@blogger.comtag:blogger.com,1999:blog-4274008603909996948.post-60703525964456746772009-10-01T11:59:49.645-05:002009-10-01T11:59:49.645-05:00I hate taking Noah for blood work too. He is hard ...I hate taking Noah for blood work too. He is hard to get and it just gets so ugly and awful!Beverlyhttps://www.blogger.com/profile/06839002672133730210noreply@blogger.comtag:blogger.com,1999:blog-4274008603909996948.post-45911710567612434142009-09-30T22:51:08.691-05:002009-09-30T22:51:08.691-05:00It seems like a lot, but it really is not. He will...It seems like a lot, but it really is not. He will likely have 2 viles of blood possibly a 3rd one. These tests are fairly routine. The poke is always worse than the actual tests. Plus, its good to know that he's being followed so closely. Our kids with Ds can have so many issues arise. <br />I really hope you get a good nurse. That makes all the difference.<br />He'll be fine. So will you. :o)Anonymoushttps://www.blogger.com/profile/05559379825105852488noreply@blogger.com